FU Epilepsy

I know I have said it before, but I will say it again, Epilepsy it the worst.  I hate it.  We all hate it.  It has the power to take so much from you and those around you.  It can take everything. We have spent so much time giving in to Epilepsy and letting it … [Read more…]

Presenting….

Earlier this year Reagan’s case was presented at a conference by her Epileptologist to other Neurologists, Radiologists, and Neurosurgeons.   As it turns out, everyone was very interested in Reagan’s case. As Blake put it, “doctors treat diseases, neurologists admire them.” From this conference a new theory emerged, and we quickly started scheduling more tests in the … [Read more…]

Wolf!

Our phones are never far from us.  They are never on silent if Reagan isn’t with us.  Even when Reagan is at daycare or with a relative, we are on call.  There is always that call that she is having a large cluster of seizures and is not doing well.  That she is stumbling around … [Read more…]