May 16, 2017 – 6 month follow-up MRI She did great! The beast has not grown! And now, because it is still stable, she doesn’t have to do another MRI for an entire year! This is absolutely amazing compared to the original diagnosis of having to get an MRI every 3 months. June 1, 2017 – … [Read more…]
Tuesday, May 9, 2017 – Graphing to be objective Apparently, I wear my heart on my sleeve, and can be very emotionally driven when I get worked up about something. When I get worked up, things tend to get blown out of proportion. I have known this about myself since I was a kid, and … [Read more…]
A few lessons that we have learned over the past month: Lesson 1: Make sure Reagan is sent to school with spare food. I can’t exactly remember how we came to this conclusion, but I believe Reagan was so hungry one day at the beginning that she ate her snack with her lunch. Then, when … [Read more…]
January 9, 2017 – Start Keto Diet In the days leading up to our hospital admission, I thought, for some overprotective, parenting-inclusive reason, that it would be a good idea to explain to Reagan that we were going to have an overnight with the doctor, and that we were going to start eating “magical” food … [Read more…]
November 22, 2016 – Meeting with the Ketogenic doctors Today is the day. The day we have been waiting for as soon as it was apparent that the medications were not working. The day that we are hopeful will set us on a new path that could change everything for Reagan and give her a childhood … [Read more…]