Earlier this year Reagan’s case was presented at a conference by her Epileptologist to other Neurologists, Radiologists, and Neurosurgeons. As it turns out, everyone was very interested in Reagan’s case. As Blake put it, “doctors treat diseases, neurologists admire them.” From this conference a new theory emerged, and we quickly started scheduling more tests in the … [Read more…]
May 16, 2017 – 6 month follow-up MRI She did great! The beast has not grown! And now, because it is still stable, she doesn’t have to do another MRI for an entire year! This is absolutely amazing compared to the original diagnosis of having to get an MRI every 3 months. June 1, 2017 – … [Read more…]
December 13, 2016 – Follow-up MRI and meeting with the Neuro-oncologist It seems that it has been over a year since we had received any good medical news. The typically optimistic people that we were at our core were slowly being replaced by more pessimistic, on edge, waiting for the next shoe to drop, type … [Read more…]
Schrodinger’s Cat – simultaneously alive and dead. Reagan’s beast – simultaneously doing nothing and growing. Simultaneously it is everything and nothing. We won’t know until tomorrow, when we peak at the beast for the second time. Tomorrow when, by us looking at the beast, we have sealed its fate as either doing nothing or growing. … [Read more…]
Over the next few hours we have a couple different visitors. The first set is a pair of Neuro-oncologists, here to discuss the tumor. It is a dorsally exophytic low grade glioma on her brain stem, specifically her medulla, and is about 1cm wide. It hasn’t grown in 9 months. 9 months ago Reagan had … [Read more…]
September 14, 2016 changed our lives more than we could have ever imagined. We had checked into Children’s Hospital to do a routine MRI (our first at Children’s) and another EMU Study. We were fortunate that they were able to hook up Reagan’s electrodes while she was still under from the MRI, which cut down … [Read more…]