Earlier this year Reagan’s case was presented at a conference by her Epileptologist to other Neurologists, Radiologists, and Neurosurgeons. As it turns out, everyone was very interested in Reagan’s case. As Blake put it, “doctors treat diseases, neurologists admire them.” From this conference a new theory emerged, and we quickly started scheduling more tests in the … [Read more…]
November is National Epilepsy Awareness Month. With that in mind, here is a brief rundown of Reagan’s Epilepsy and Epilepsy in general. It’s been a very, very long 2+ years working our way through Reagan’s Epilepsy. We still are dealing with a steady increase in seizure frequency, including nocturnal seizures. She’s currently on 3 anti-epileptic … [Read more…]
Reagan has Doose Syndrome. That is what we have learned in June. Doose. A genetic syndrome that only 1-2% of children with Epilepsy have. Genetic. That was the hardest part for us to initially wrap our heads around. Last year, we had spent a considerable amount of time and effort getting the Epilepsy genetic test … [Read more…]