Author: JJB

The Consultations

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Over the next few hours we have a couple different visitors.  The first set is a pair of Neuro-oncologists, here to discuss the tumor.  It is a dorsally exophytic low grade glioma on her brain stem, specifically her medulla, and is about 1cm wide.  It hasn’t grown in 9 months. 9 months ago Reagan had … [Read more…]

The beast

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September 14, 2016 changed our lives more than we could have ever imagined.  We had checked into Children’s Hospital to do a routine MRI (our first at Children’s) and another EMU Study.  We were fortunate that they were able to hook up Reagan’s electrodes while she was still under from the MRI, which cut down … [Read more…]